Sunday, June 24, 2012

Fear of more


So you have a child diagnosed with Type 1 Diabetes, where does that leave you with wanting future children? Do you go on with family planning and hope for the best? Do you not have any more children, and be blessed with the 1 that you have? What if your child already has siblings, do we as parents overreact to normal, kid like symptoms, because we are always in high alert for the symptoms of Type 1 Diabetes?

For me, this was a particularly hard subject to face. I had my daughter at the young age of 20 years old, and then we got the diabetes diagnosis when she was 2.5 years old, I was 22. This threw my already crazy world into an even crazier roller coaster. We embraced the diagnosis though, and have ran with it ever since, doing all we can to help educate other families and the general community about Type 1 Diabetes. It made me slow down and think about any future children that my husband and I may choose to have. I knew that I wanted Aly to have at least 1 sibling, I always knew that I wanted 2 children, but Aly’s diagnosis really made me reconsider this “want”, because I did not know if I could deal with another child’s diagnosis. It took us 5 years to finally make the decision that we will leave it in God’s hands, if he had it in my deck of cards to be the mother of more than 1 diabetic child, then bring it!! I CAN DO THIS!!!

My son is now 2.5 years old, the same age Aly was when she was diagnosed with Type 1 Diabetes, and the emotions that surround Joel being 2.5 hit me more than I ever thought it would. I look at him, and remember my little princess being SO sick, frail, and all the other crap that goes along with a diagnosis of Type 1 Diabetes, but also praying to God that we do not get another diagnosis. I know many parents out there in the D.O.C. who have multiple children diagnosed with Type 1 Diabetes, and they manage to do it every day and kick diabetes tooshie.  I fear every time that he drinks more than he normally does, every time he may pee more often than usual, when he doesn’t want to eat, I pretty much fear all the time, of my son having to be on this crazy roller coaster ride that his strong bigger sister is on. I know that we would rock it just like we do daily with Aly, but selfishly for him and I, I do not want to deal with diabetes anymore than I already do.

We had Joel tested in November 2011 with the Trial Net study, and thank the Lord it came back negative, but he will continue to be tested yearly as we all know that the antibodies can show up at any time. I truly believe that we will be watched over, and just continue to take each day for the blessing that it is with Joel not being diagnosed, and should that day ever come (fingers crossed it never does) we will do the same thing as we did with Aly, and roll with it.

I do have to say that the D.O.C. has been a life saver while making the decision to continue with family planning, and having more children. It was amazing to see these other families that had 2-5 children all diagnosed with Type 1 Diabetes, and them managing just like the rest of the diabetes community. They helped me realize that I could do it too, and that Aly’s life would be even more blessed because she will always have her brother right there to back her up, catch her when she falls, and help her fight kicking diabetes tooshie!!

I advise any and all of you, that if you have not found the diabetes community to do so! You can contact me at our website www.hopeforaly.weebly.com and I can get you in contact with thousands of other parents, people with diabetes, caregivers around the world. You can also get in touch with the Blue Heel Society http://blueheelsociety.org and they will gladly take your hand and walk you through this journey as well.
Just don’t forget to remember that “I CAN DO THIS!!”

Just FYI:

Type 1 diabetes tends to have less tendency to have other family members affected with diabetes than type 2 diabetes. In the first large family study of diabetes, less than 4% of parents and 6% of siblings of a person with diabetes also had diabetes.

In studies with identical twins, less than 50% of the siblings of a person with diabetes also had diabetes versus almost 100% of siblings of people with type 2 diabetes. Children of fathers with type 1 diabetes are more likely to develop type 1 diabetes than children of mothers with type 1 diabetes.

Wednesday, June 20, 2012

Who needs sleep?

So who needs sleep right? Well apparently not me :/.

I do not know what is going on with me lately. I know that I always have a fear when I go to sleep that my daughter will not be alive when I wake up in the morning. I wake up with a sick feeling in my stomach and so I get up and go check in on her and check her blood sugar. We are 5 years into diabetes management and some days are better than others. Aly is always positive about it (thank god!!) but the more and more that I get into diabetes education and the more I learn it freaks me out more and more. I absolutely LOVE doing diabetes education!! I would NOT change it for the world but it really shows me more and more the nasty side of the disease. It also shows me some positives and learning about the upcoming sciences and products is awesome but there is still that motherly side that is just scared. Scared of my daughter not waking up the next morning, dropping too low and not recognizing it, she is only 8 years old.

The last several weeks I have been going on about 5 hours of sleep a night, I know some people can do it (like my husband) but wow, ya I am not really one of them. I am so tired by the mid day that it isnt funny but some how I will get a 2nd wind and still stay up until midnight or 1am facebooking and checking Aly's blood sugars every 2 hours until I go to bed.

I sometimes wonder if it is because I always put so much on my plate, organizing a Making Tracks for Celiacs 5K Walk, Acoustics for a Cure, Shopping for Hope, Sizzle and Shop, Diabetes Education, My daycare business, and being a mom/wife. I love everything I have on my plate but sometimes I just need more  time in the day.

I just don't know :/ I know it will all work out in the end, my princess will live a long fabulous life, I will get to educate others about diabetes, and we will see what I choose to do with the daycare.

Sorry for my rambling I think I need sleep :)

Tuesday, June 19, 2012

We reached 500 "likes"

9 short months ago I decided to start a facebook page called Type 1 (Juvenile) Diabetes Facts and Information because I wanted to be able to educate others on Type 1 Diabetes. Today we reached 500 "likes"! This is just fantastic in my opinion. I never expected many people to join the page and listen to the information that I share on a daily basis, but guess what. They came, they stayed, and they continue to listen.

I am so stoked. Now on to my next goal of 1000!! :)

Have a great night everyone!!

Aly says good night to everyone also

Acoustics for a Cure

We want to thank everyone who helped Hope for Aly make the 3rd annual Acoustics for a Cure benefit concert all that it was and the best one we have had yet. We all had a blast and had about 100 people in attendance within the 6 hours that we had the concerts.

We could not have done it without our AMAZING bands. We want to thank River Cow Orchestra, Red Velvet Crush, Band 13, Josey Milner, For The Broken, and The Green Music Brothers.

We want to thank Jeff Woods with 360 Photography for his time and beautiful pictures that he took at Acoustics for a Cure. 360 Photography is the official photographer for Hope for Aly so watch for his work even more with us

We could not have done it without our venue who was amazing with our needs. Thank you Todd Spurck and Bullfrogs for the venue, we had a blast!!

All together we raised almost $1000 and were able to give a portion of the money raised to Kids With Courage to help them continue their mission of supporting local families with Type 1 Diabetes.

We hope to see you there next year.

PUT IT ON YOUR CALENDAR NOW :) JUNE 8TH 2013, BULLFROGS IN LEE'S SUMMIT MO!!


Thursday, January 19, 2012

Trial Net Result

On Oct 1st, 2011 we had Joel (Alys younger brother) tested in the TrialNet study, we got his results back and he tested NEGATIVE for the antibody .... so you ask what does that mean for Joel and our family .... what that means is that he has less of a chance to be diagnosed with Type 1 Diabetes. We have to have him retested yearly. A negative result is NOT a guarantee that his pancreas won't crap out on insulin production but still a pretty good chance that he won't. Great result for our family

Thursday, November 24, 2011

Thanksgiving

Today is a day to give thanks for all the blessings that you have in life and for us D parents to do a lot of Swagging (scientic wild ass guessing) in regards to the carb count for our childrens food.

Today in my family we are thankful to every single researcher out there that is helping to make the lives of our children better, we are thankful that they are trying to find a cure for all d individuals. We are thankful for lab created insulin, without this crucial man made hormone all T1D individuals would pass away. We are thankful for the insulin pump that helps us in administering the insulin to my daughter. We are thankful for the DOC, without them I would not have most of the knowlege and support that I have today. We are thankful for LIFE!


Saturday, October 1, 2011

Walk Day

Today we walked in our 5th, yes 5th, Walk to Cure Diabetes. We had a blast. Our 2 mile stroll was great exercise, we met up with old acquintances and met new ones. We got Aly's younger brother who is 22 months old tested with the Trial Net study, and just had a great walk.

After the walk we went straight over to Carolyns Country Cousins Pumpkin Patch and did diabetes education, we will be there again tomorrow. Awareness needs to be put out there and so out there I will be :)