So over the past week I hit on what it is like to be the mother of a type 1 diabetic, the father of a type 1 diabetic, and today we have some interviews from 2 amazing men who have lived with type 1 diabetes for 30+ years.
These men have seen all the changes that have come about in diabetes treatment and management, they have seen the DOC come into fruition with the help of the internet, and they drive others to know that you/your child CAN live a long healthy life despite the diagnosis of type 1 diabetes.
Richard is the author of Beating The Odds: 64 Years Of Diabetes Health in which he tells the story of how he was first diagnosed with type 1 diabetes in the 1940s, and the steps he needed to take to overcome the problems which this caused. You can purchase his book online through Amazon
Here is his interview with me ...
Q: Your first name
Q: How old are you?
Q: For the management of your Type 1 Diabetes are you on an insulin pump (If on pump which one) or multiple daily injections?
Q: What made you choose this method for management?
Q: How comfortable are you with managing your diabetes?
Q: What has changed the most in regards to diabetes management since you were diagnosed?
Q: What does a typical day look like in your household in regards to diabetes management?
Q: What does a typical day’s diet look like?
Q: What tips or advice would you give to a newly diagnosed Type 1 Diabetic children/teen/adult?
A: I advise the parents of newly diagnosed diabetic children to choose an endocrinologist who works well with them and the children. It is so important to have a doctor who knows diabetes well, and who gives good advice. Parents should read books and join online parents support groups. Working with experienced parents of diabetic children can be a tremendous asset. All newly diagnosed diabetics should get to know other diabetics who are experiencing the same problems. Support groups in their local communities, and online, are very helpful. There are many very good books written that can also be a great help.
Q: Besides a cure what 1 thing would you like to see researchers working towards and why?
A: All type 1 diabetics, their loved ones, and the parents of diabetic children are hoping for a cure. So much research has been done that suggests that a cure might be possible, but time after time the research has not produced what we are all looking for. There are many discoveries like the insulin pump, the continuous glucose monitor, and the soon to be automatic pancreas that help so much, but none of them are cures. I hope an actual cure will be seen in the not too distant future.
I hope that researchers will determine why some of us long term type 1 diabetics have lived so long and are so healthy, without serious complications. The Joslin Medalist Study has examined more than 700 type 1 diabetics, all of whom were diagnosed at least 50 years ago. It is hoped that the factors that have enabled these individuals to live long, healthy lives, will be found. If the factors are found, then maybe a treatment can be devised that will help younger type 1 diabetics to also have longer and healthier lives.
Q: What would you like to see more of out of the Diabetes Online Community?
A: The diabetes online community (DOC) is wonderful, and so much can be learned there. The thing that bothers me most about the DOC is the occasional arguments between individuals. There was a bitter debate between type 1 and type 2 diabetics on one of the biggest online communities. It was called the Civil War among diabetics, and written up in some major newspapers. The website that sponsored that debate lost some members, and I do not post there very often now. It left very bitter feelings for me, even though it had been my favorite diabetes website at one time. This kind of thing is unnecessary, and should always be avoided. There have been some debates like this in Facebook groups too, but things seem to have improved in that respect during the past year.
Q: What is your favorite thing about the Diabetes Online Community and why?
Q: What is your least favorite thing about the Diabetes Online Community and why?
You can read more about Richard and his life with type 1 diabetes by reading his book Beating The Odds: 64 Years Of Diabetes Health
I appreciate the time he took to help me with this multi-segment blog and I hope you all are liking the posts so far .. Plenty more to come.