Tuesday, July 3, 2012

What is it like ...

Our next mother that we are featuring here on the blog is Trish. She is the mother of an young teen T1 diabetic and hits on how it is to mother a teen T1

I know there are plenty of moms out there that have gone through this and can probably understand where Trish is coming from.

 Q: Your Name
A: Trish

Q: How old is your child and how long has your child been a Type 1 Diabetic?
A: Kenny was diagnosed on March 18th 2009. He was 11 years old and had a blood sugar over 900. He spent 5 days in ICU.He is now 14 years old

Q: For the management of your child’s Type 1 Diabetes are they on an insulin pump (If on pump which one) or multiple daily injections?
A: We were on MDIs of novolog and lantus until March 2012 when he went on the MM Revel.

Q: What made you choose this method for management?
A: We decided on the pump for more freedom as far as when you want to eat instead of having to eat at a set time. It gives him more freedom as a teen.

Q: How confident are you with managing your child’s diabetes?
A: I am very comfortable in managing his diabetes, so far. Although right now I am going through elevated creatinine levels, which scares me! We do everything right, but it’s not always enough!

Q: What does a typical day look like in your household in regards to diabetes management?
A: A normal day in our household with diabetes is a lot of teamwork. I am a single mom who works in special ed, and I go to college. Both my kids are teenagers, so there is a lot in testing blood sugar numbers to me, and if there are questions about the pump. Kenny does his site changes, and knows how to suspend if necessary. His sister also can help as needed. We depend on everyone to pitch in.

Q: What does a typical day’s diet look like?
A: We do not have a restricted diet of any sort. We do unsweetened drinks, and diet sodas. He's a big water drinker so that helps. He eats like a normal teen, except he loves veggies!

Q: Besides a cure what 1 thing would you like to see researchers working towards and why?
A: I would like to see the artificial pancreas available to all. How great would that be, if we can't have a cure right now....give my son this!

Q: What tips or advice would you give to other parents of newly diagnosed Type 1 Diabetic children/teens?
A: Tips for newly diagnosed...hang in there. Find support online, with family, and know that you probably hit rock bottom..Its normal. It’s a rough ride, but you are not alone. It’s a horrible disease, but you will find the support you need if you. open up to others.

Q: What would you like to see more of out of the Diabetes Online Community?
A: I would like to see more face to face meetings in local areas with members of the DOC. To reach out and hug the ones who sat with you at 3a.m. with a low bs.

Q: What is your favorite thing about the Diabetes Online Community and why?
A: I love the friendships, the advice, the unity, and the love that comes from the DOC. The feeling that I am never alone in this fight.

Q: What is your least favorite thing about the Diabetes Online Community and why?
A: least favorite thing? I don't have one!

Q: What 1 thing would you like to see discussed in the Diabetes Online Community that is not discussed enough?
A: I would like to see more groups that are around based on age groups of your T1. My teenager may join a group for just teens. Maybe...lol. other than that...I love the DOC!

Still plenty more to come :) Keep checking back. I am having fun reading all the points of views that we have already had and those still to come.

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