Tuesday, July 3, 2012

What is it like ...

To be the mother of a T1 Diabetic

Today I am continuing our multi-segment blog about all the people affected by Type 1 diabetes, how they manage the day to day, their views on the diabetes online community, and what they would like to see in the future.

We continue with Colleen.

Q: Your Name:
A: Colleen

Q: Child’s age at diagnosis 
A: 1 year old  

Q: How long has your child been a Type 1 Diabetic 
A: 4 years

Q: For the management of your child’s Type 1 Diabetes are they on an insulin pump (If on pump which one) or multiple daily injections? 
 A: Pump

Q: What made you choose this method for management? 
A: He was so small at diagnosis he needed smaller doses then half unit.

Q: How comfortable are you with managing your child’s diabetes? 
A: Hum, I don't like the word comfortable as I HATE having to do it and is still uncomfortable in that respect but I'm confident in being able to do it.

Q: What does a typical day look like in your household in regards to diabetes management? 
A: Crazy, he also has epilepsy. I have discovered with the two there is no textbook standard of control with him. He has a non convulsing seizure disorder. I can't see the seizures. The seizures raise blood sugar, high blood sugar causes more seizures....not fun. Pumping affords us the best control as I can make micro doses of insulin & affect change in BG faster & easier then with MDI.

Q: What does a typical day’s diet look like? 
A: Crazy, he is a very picky eater. Basically junk food. He hates all vegetables and will not eat many fruits.

Q: Besides a cure what 1 thing would you like to see researchers working towards and why? 
A: Nothing, I want the big bucks to got ward a cure.

Q: What tips or advice would you give to other parents of newly diagnosed Type 1 Diabetic children/teens? A: Seek out support from other parents with T1D children. Read all you can about T1D and it does get better as you gain more confidence in how your child reacts to the disease.

Q: What would you like to see more of out of the Diabetes Online Community? 
A:  I don't know 

We hope that any of you mothers out there can relate to Colleen's feelings about being a parent of a Type 1 Diabetic and also a member of the Diabetes Online Community.

Check back in a few hours and we will have some more interviews from other mothers of T1 Diabetics so check back often for new posts :) 

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